But Sandwich

We’re home now, which is better than being stuck in a hospital. We get to shower and put on clean clothes, cook a meal and sleep in our own beds. We’re able to enjoy the lights on our Christmas tree and the garland stretched across the mantle over the crackling fireplace. We’ve watched holiday movies with our kids and kissed the grimy-faced little boys we’ve been apart from for more than a week.

But we’re not healthy still. Grady’s got a version of what Rosie has. Fortunately, it only affects toddlers mildly. Eli’s appetite is low and he has been a little sniffly. Not a big deal under normal circumstances but considering what we’ve been though lately, we don’t take anything lightly.

Kelley and I have both come down with probably the same thing. For us, it’s a head cold but with Rosie’s RSV in its history. We’re both getting better but it makes it a challenge to care for a baby with nasty chest congestion and breathing impairment, a toddler and a six year old with a cold and try to make Christmas memorable for them.

What you will not hear from us is complaining. No matter how challenging these days, we are glad to be at home walking though this together.

As most of you know, our family is the center of our lives. And for us, when we are apart we feel it. So to be together, regardless of what’s going on within and around us, is more fulfilling than any other option. Especially during the holiday season.

I know we still have a week or so to go before Rosie is actually cleared. She has to sleep elevated for awhile until we are certain her O2 levels stay in the safe zone while she sleeps. To do this she is strapped into a specially designed wedge that helps her breathe and keeps her oxygen where it needs to be. The problem is – she hates it. It scares her. And her voice is gone from all that she’s been through, so when she cries we don’t hear her. It’s heartbreaking, really. She wakes up alone in a contraption she can’t escape from and can’t tell us she needs us.

Best I can relate, it’s like the dreams I have where I’m being chased and can’t produce the sound from my voice to scream for help.

Last night, we put the wedge between us in our queen-size bed so that if she woke up, we’d be there with her and maybe she wouldn’t be so scared. But due to its size, Kelley and I each have less than two feet of space in the bed for our adult bodies. Which only allows for one sleeping position; I call it the coffin pose. Toes up. Hands crossed across the chest. No movement allowed. Some people may like this. It’s a bit restrictive for us.

We’ll work it out somehow.

We have become more aware recently how connected we all are to each other.

You and I.
We and them.
All of us.

Your prayers over the past ten days have been enriching, empowering and enlightening. We have begun to discover more of the richness of how our prayers connect us not only to our Creator but to the spirits of each one of you. Please know that we are deeply grateful for all the ways you have given to us. Not just the last week and a half but in ways that we are very likely unaware.

We are thankful. There is more good news these days than bad.

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A Little Bit of Good News

She did better last night.

Still not checking out of Hotel Children’s any time soon but this sickness is getting further and further behind us.

Doctor came by this morning and felt like the reasons we moved her to SCU have all been relieved and believes she could safely be moved back to a private room. However, as of 9 AM today there are no vacancies anywhere in the hospital.

So, for all of you who are offering prayers, here is our immediate request.

We need to get Rosie out of SCU and into a private room where we can provide for her more readily.

She is not comfortable here and neither are we. The visiting schedule is so fragmented that sleep hasn’t come easily for any of us. Kelley and I did trade off a bit of sleep last night and this morning. But it would be so beneficial to get us all back on a more regular schedule.

So, if you’d like to pray for something specific, we want to move into a private room today. To do that, someone(s) will have to be discharged; add them to your prayers as well.

We love you all so much. Thank you again and again for the letters, emails, comments, re-tweets, texts, gifts, food, coffee, hotel room, clothes, prayers, visits and conversations.

There is no unit of measure to quantify the love and appreciation we feel toward each of you.

Your support is our strength.

Prayers

First// let me say a very broad and widespread ‘thank you’ to each of you around the world who have spoken Rosie’s name in a prayer.

For you, let me be the first to tell you that she is showing some improvement. This morning, the doctor had a brilliant hypothesis based on the two things we know for certain; she has RSV and she had a metal scope in her lungs. The RSV, being a virus, has no cure other than waiting and no treatment besides oxygen. The aggrivation from the scope though could be contributing to the labored breathing Rosie has been experiencing. He ordered a steroid shot for her and about an hour later she was exhibiting noticable improvements.

Now, she is by no means all better but there is no doubt she is improving.

I know there have been countless Pray-ers authoring petitions to heaven from all points earthbound. I know of a parish in Des Moines. A hamlet in San Francisco. Urban neighbors in Raleigh. Townships in Virginia, Pennsylvania and Delaware. And those are just the ones from the past 24 hours. The outpouring has been encouraging.

Our next request is that we get moved back out of Special Care Unit (SCU) and into a room tomorrow. The doctor is hopeful after checking in on her this afternoon that we’ll be out of SCU and into a private room again by morning. She is not fully recovered but getting through tonight without incident and with continued improvement will move us back into a room and back on track to her recovery.

So, again… thank you, each of you for all your prayers.

Next// I’d like to invite a bit of interactivity. I’ve talked with some of you at different times regarding prayer. And just about everyone had a different perspective on the reasons and the methods and the benefits of prayer. Some say, ’It’s easy. Just as natural as conversation.’ Others say, ‘Prayer is a way to bombard the gates of heaven and fight against the evil forces of hell.’ And still some say, ‘It is the opportunity to participate in something larger and beyond ourselves.’

Prayer, at times seems so logical. And at the same time so mysterious it refuses logic.

So, I’d like to put it to you//

What is prayer to you?

Why is it important to pray?

What are the benefits of prayer?

Love you all.