I’ve wanted to post an update regarding Aila’s medical evaluations, but I couldn’t quite find the words. She had an MRI of her brain on Monday because one of her doctors suspected swelling. The good news is there is no swelling. But her MRI showed a condition called PVL, which is basically areas of brain damage due to lack of oxygen. I got off the phone with a list of referrals and a need to vomit. Because that’s how your body responds when you hear the words brain damage when talking about your baby girl.
I looked over at her trying to lift her leg high enough to crawl up on the foot stool in front of our chair. She desperately wants to scale that stool and tries over and over again, every day. And I got so scared, wondering if we were seeing her best days. Because what if this damage was progressive. What if it got worse? And let me tell you, doctor Google was NOT reassuring.
I called my husband and then I prayed. Here’s what God gave me.
We can’t fix her.
She will still have Down syndrome. She may have permanent brain damage. She may live to be 60 years old. Or she may not. There are no more guarantees on her life than there are on our own, and there are no fewer fears. We didn’t bring her home to fix her.
Adoption has always been about giving her a family.
That’s what God asked us to do. Be her family. She may have no future severe medical issues or she could see a specialist a month for the rest of her life.
Through it all, God wants her (and every child for that matter) in a family. And through some mystery, He saw fit that we should be the lucky ones to welcome her in.
And since that day three months ago when we stood in front of an official and swore an oath to always love her and be her family forever, we’ve seen gains. A lot of gains, actually. She crawls. She signs “eat” and “bottle.” She has grown 2 inches and gained 4 pounds. But above all that, she gained a sister, two brothers, a mama, and a daddy. And she knows who we are. She knows we are family.